A data-sharing agreement is an agreement between a party with useful data (the Discloser) and a party that searches for data for research on (the recipient) under which the public agrees to share its data with the recipient. These could be two universities that agree to share data for research cooperation, one or more private companies active in research or development, and even a government agency working with a private agency. In the absence of strong intellectual property rights to protect data and databases in the United States, data-sharing agreements work best if they are part of a broader agreement among research partners. An individual agreement on data sharing is not intended to supplant the greater agreement between the partners, but to complement and support a particular aspect of the broader agreement. For a detailed overview of the role of a data-sharing agreement in a larger project among research partners, see Data Sharing: Paige Backlund Jarquin MPH, Colorado Clinical and Translational Sciences Institute – Rocky Mountain Prevention Research Center. The law also prohibits these departments from disclosing identifiable information on the Statistics Canada database. Statistics Canada has reached an agreement with the provincial ministries of health (Quebec, the Quebec Statistical Institute), Health Canada and the Public Health Agency of Canada to provide information gathered as part of this survey. The goal is to reduce the burden on respondents and reduce the cost of data collection. This means that, in many cases, provinces are not required to collect this information through their own investigations. The information you provide to us can only be disclosed with your consent. .
The Canadian Longitudinal Study on Aging (CLSA) is a research project that is being conducted to learn more about the physical, mental and social changes that occur to people as they age. This is a long-term study conducted over 20 years or more. Participation in the CLSA is purely voluntary. If you decide to share your contact information and/or responses with universities (McGill, McMaster and Dalhousie), they can contact you later to ask you to participate in the Canadian Study on Aging. This project will benefit current and future generations by examining how we age over time. However, by agreeing to share your contact information and/or survey responses, you are not required to participate in the CLSA. Why do universities (CLSA) want my contact information? Data Resources and Challenges for First Nations Communities – Prepared for Katie McBride`s Alberta First Nations Information Governance Centre. . Framework for a Data Sharing Agreement – Prepared for The Alberta First Nations Information Governance Centre by Krista Yao Indigneous Knowledge Use – Sharing Template Agreement (CSD) What is the Canadian Longitudinal Study on Aging (CLSA)? Deh Cho First Nations Traditional Knowledge Research Protocol Ownership, Control, Access and Possession (OCAP): The Path to First Nations Information Governance by The First Nations Information Governance Centre of Ethical Métis Research – Métis Centre – National Aboriginal Health Organization The research team for CLSA is led by researchers from three Canadian universities – Dalhousie, McGill and McMaster – who are directly responsible for the CLSA.
Data-sharing agreements are intellectual property rights, but very small rights. Databases are protected by copyright, but in the United States they have very little or no copyright protection, but have more robust protection elsewhere. For more information, see the intellectual property clause.